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How do I use the fact sheets?
GeneFacts fact sheets are designed to be used at the point of care, in your office. There are a num...
Who produces the fact sheets?
GeneFacts is a product of the National Coalition for Health Professional Education in Genetics (NCHP...
How are genetic conditions chosen for the fact sheets?
GeneFacts fact sheets are produced on an ongoing basis. The editorial team identified an initial li...
Where can I find more information about these conditions?
Each fact sheet has both a "Resources" and "References" section that provide additional sources of i...
What do I tell my patients about privacy concerns?
The Genetic Information Nondiscrimination Act (GINA) protects patients from health insurers and empl...
Genetic Information
Nondiscrimination Act
With genetic testing becoming increasingly pervasive in medical care and our daily lives, three of the most prominent organizations in genetics—the Genetics and Public Policy Center at Johns Hopkins University, the National Coalition for Health Professional Education in Genetics, and Genetic Alliance—have teamed up to produce educational materials about the Genetic Information Nondiscrimination Act (GINA), a landmark federal law that protects individuals from the misuse of genetic information in health insurance and employment.Discussion Guide for Clinicians Teaching Materials Case Studies
